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Patient‐reported outcome measures among breast cancer survivors: A cross‐sectional comparison between Malaysia and high income countries

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Psycho-Oncology

Published online on

Abstract

--- - |2 Abstract Objectives: Patient‐reported outcomes (PROs) in high income countries (HICs) suggest that physical, emotional, and psychological needs are important in cancer care. To date, there have been few, inconsistent descriptions of PROs in low and middle income Asian countries. Using a standard questionnaire developed by the International Consortium for Health Outcomes Measurement (ICHOM), we compared the perceived importance of PROs between patients in Malaysia and those in HICs, and between clusters of Malaysian women. Methods: Breast cancer patients were recruited from 3 Malaysian hospitals between June and November 2017. We compared the proportion of patients who rated PROs as very important (scored 7‐9 on a 9‐point Likert scale) between Malaysian patients and data collected from patients in HICs via the ICHOM questionnaire development process, using logistic regression. A two‐step cluster analysis explored differences in PROs among Malaysian patients. Results: The most important PROs for both cohorts were survival, overall well‐being and physical functioning. Compared to HIC patients (n=1,177), Malaysian patients (n=969) were less likely to rate emotional (78% vs 90%), cognitive (76% vs 84%), social (72% vs 81%) and sexual (30% vs 56%) functioning as very important outcomes (p<0.001). Cluster analysis suggests that older, parous Malaysian women, who were less likely to have received breast reconstructive surgery, were more likely to rate body image and satisfaction with the breast as very important outcomes. Conclusion: Taking into account the differences in PROs by cultural and socio‐economic settings could improve patient expectation of services and refine the assessment of cancer care outcomes. - Psycho-Oncology, Volume 0, Issue ja, -Not available-.