‘I do Things that I don’t Really Want to do …’: Understanding the Everyday Lives of Family Carers of People With Dementia

Jacoba Huizenga, Sascha Bolt, Jean Pierre Wilken, Nienke Bleijenberg, John Keady, Tine Van Regenmortel, Research Center Social Innovation, HU University of Applied Sciences Utrecht, The Netherlands, Department of Tranzo, School of Social and Behavioral Sciences, Tilburg University, The Netherlands, Research Center Healthy , Sustainable Living, HU University of Applied Sciences Utrecht, The Netherlands, Department Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, The Netherlands, Division of Nursing, Midwifery and Social Work, Greater Manchester Mental Health NHS Foundation Trust, The University of Manchester, Research Institute for Work and Society, Faculty of Social Sciences, University of Leuven

Dementia: The International Journal of Social Research and Practice

Published online on August 12, 2025

Abstract

Dementia, Volume 25, Issue 6, Page 1210-1228, August 2026.
In the Netherlands, where this study was conducted, there are around 800,000 family carers of people with dementia. Research into the needs and priorities of people with dementia and their family carers is crucial for developing tailored care and ...