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Needs and Experiences of Volunteers Working in the Care of People With Intellectual Disabilities

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Journal of Policy and Practice in Intellectual Disabilities

Published online on

Abstract

["Journal of Policy and Practice in Intellectual Disabilities, Volume 23, Issue 2, June 2026. ", "\nABSTRACT\nInformal support networks are essential for the inclusion and quality of life of people with intellectual disabilities, especially in light of increasing pressure on formal care systems due to staff shortages and budget cuts. Volunteers can play a key role in these networks by providing companionship, emotional support and leisure activities. Research on the needs of volunteers involved in the care of people with intellectual disabilities is limited. A better understanding of how volunteers perceive their role, and what they need to be and remain engaged is crucial to effectively support and integrate their contributions within care. Therefore, this study explores the needs of volunteers, how they perceive their role and how they can contribute to the care and lives of people with intellectual disabilities. In this qualitative study, 22 volunteers were interviewed in three focus groups covering residential care, daycare activities and leisure activities settings. A semi‐structured interview guide was used and data were analysed using reflexive thematic analysis to identify key themes related to volunteer motivations, needs and perceived roles. Volunteers were primarily motivated by close and reciprocal relationships with the people they support, which they considered to be the foundation of their volunteering experience. They emphasised the importance of experiencing autonomy in their work, alongside alignment with personal interests, clear role definitions, practical information and organisational support. Being recognised and included by support staff enhanced their sense of belonging. These findings suggest that volunteering offers meaningful experiences for volunteers and supports positive interactions with people with intellectual disabilities. The results underscore the importance of more equal collaboration with staff, clearer role definitions and stronger organisational support to maintain and strengthen volunteer involvement. Further research is needed to confirm these findings.\n"]