Creating a Dementia Caregiver Assessment Tool for Home Health: User-Centered Development, Refinement, and Content Validity Testing

Julia G. Burgdorf, Sasha Vergez, Jennifer L. Wolff, Margaret V. McDonald, Kathryn Bowles, Center for Home Care Policy , VNS Health, New York, Department of Health Policy , Johns Hopkins Bloomberg School of Public Health, University of Pennsylvania School of Nursing

Dementia: The International Journal of Social Research and Practice

Published online on June 02, 2026

Abstract

Dementia, Ahead of Print.
In the United States, home health care (HH) provides skilled nursing, therapy, and aide services delivered in patients’ homes. One-third of HH patients have diagnosed dementia and these individuals rely heavily on support from family and unpaid caregivers ...