Supported Decision‐Making in Young Adults With Intellectual Disabilities—Perspectives of Parents and Personal Assistants
Family Relations / Family Relations Interdisciplinary Journal of Applied Family Studies
Published online on July 29, 2026
Abstract
["Family Relations, EarlyView. ", "\nABSTRACT\n\nObjective\nThe study aimed to address the following research question: How do parents and personal assistants describe and evaluate their efforts to support decision‐making among individuals with intellectual disabilities?\n\n\nBackground\nThis study responds to a gap in the literature by examining how behavioral patterns of parents and personal assistants interact and influence one another, either enhancing or limiting the supported decision‐making capacities of individuals with intellectual disabilities.\n\n\nMethod\nSemi‐structured interviews were conducted with 12 parents and 12 personal assistants of young adults with mild intellectual disabilities. Participants met the inclusion criteria of being directly involved in supporting the decision‐making of individuals aged 18–29 years with intellectual disabilities. Data were analyzed using open and axial coding within a grounded theory framework.\n\n\nResults\nAnalysis revealed three central themes. The first concerned participants' understanding of facilitating choice and promoting self‐determination among individuals with intellectual disabilities. The second focused on relational interaction patterns between parents and personal assistants, shaped by their attitudes toward autonomy and independent decision‐making. The third theme addressed how parents and personal assistants mutually evaluated each other's engagement in supporting autonomy and self‐determination.\n\n\nConclusion\nThe findings underscore the complex and demanding nature of supporting decision‐making among individuals with intellectual disabilities. Participants described practical challenges related to facilitating meaningful choice, highlighting barriers to the effective implementation of supported decision‐making. The study emphasizes the need to involve all stakeholders—adults with intellectual disabilities, their parents, and personal assistants—in dialogue and collaboration to develop support systems that address diverse needs and promote autonomy.\n\n"]