Missed Opportunities for Goals-of-Care Conversations in a Patient With End-Stage Juvenile Huntington’s Disease: A Case Report

Ignacio Borque, Nuria Pérez de Lucas, Alicia González, Eduardo Bruera, Department of Palliative, Integrative Medicine, The University of Texas MD Anderson Cancer Center, Specialized Home Palliative Care Support Team, Southeast Madrid Health Area, Faculty of Medicine and Institute for Culture and Society, University of Navarra

American Journal of Hospice and Palliative Medicine®

Published online on August 11, 2026

Abstract

American Journal of Hospice and Palliative Medicine®, Ahead of Print.
IntroductionJuvenile Huntington’s disease (JHD) is a rare, severe neurodegenerative disorder with early onset, high symptom burden, and a predictable trajectory toward advanced disability and premature death. Despite this, goals-of-care (GOC) ...