Beyond the diagnosis: Living with Stickler syndrome – A qualitative exploration of health-related quality of life in a cohort of adults with Stickler syndrome in Norway
Journal of Health Psychology: An Interdisciplinary, International Journal
Published online on May 18, 2026
Abstract
Journal of Health Psychology, Ahead of Print.
Stickler syndrome is a rare connective tissue disorder potentially affecting vision, hearing, craniofacial structures, joints, and spine. Research on health-related quality of life (HRQoL) in this population is scarce. This study explored how adults with ...
Stickler syndrome is a rare connective tissue disorder potentially affecting vision, hearing, craniofacial structures, joints, and spine. Research on health-related quality of life (HRQoL) in this population is scarce. This study explored how adults with ...