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Alienation in adults with NF1 and parents of children with NF1: A mixed methods study on mental health and primary care experiences

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Journal of Health Psychology: An Interdisciplinary, International Journal

Published online on

Abstract

Journal of Health Psychology, Ahead of Print.
This mixed methods study examined mental health concerns and alienation among U.S. adults with neurofibromatosis type 1 (NF1) and parents of children with NF1. Qualitative interviews with six adult patients and six parents revealed 14 mental health ...